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Es sind vor allem junge Menschen, die durch einen Infekt aus dem Leben gerissen werden.
Die neuroimmunologische Multisystemerkrankung Myalgische Enzephalomyelitis ME (oft auch als Chronic Fatigue Syndrome CFS bezeichnet) ist eine Krankheit, die alle Dimensionen sprengt.<\/p>\n
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Es existiert hierzulande keine medizinische, soziale und pflegerische Versorgung f\u00fcr ME\/CFS-Erkrankte.\u00a0F\u00fcr diese \u201everlorenen Stimmen\u201c setzt sich die Lost Voices Stiftung ein, um sie ins Blickfeld des Gesundheitssystems zu r\u00fccken. In diesen Bereichen sind wir zu diesem Zweck t\u00e4tig:<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=“1_3,1_3,1_3″ _builder_version=“4.16″ background_color=“#fffafc“ global_colors_info=“{}“][et_pb_column type=“1_3″ _builder_version=“4.16″ custom_padding=“|||“ global_colors_info=“{}“ custom_padding__hover=“|||“][et_pb_blurb title=“Aufkl\u00e4rung \u00fcber ME \/CFS“ url=“https:\/\/lost-voices-stiftung.org\/aufklaerung\/“ image=“https:\/\/lost-voices-stiftung.org\/wp-content\/uploads\/2021\/03\/kOOlibri-kommunikation_210119658_xl-2015.jpg“ _builder_version=“4.16″ header_font=“|600|||||||“ header_font_size=“20px“ header_line_height=“1.2em“ text_orientation=“center“ link_option_url=“#“ global_colors_info=“{}“]
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Menschen mit ME verf\u00fcgen nur noch \u00fcber einen Bruchteil ihres fr\u00fcheren Leistungsverm\u00f6gens. Dadurch sind sie nicht mehr in der Lage, ihr Leben wie gewohnt zu bew\u00e4ltigen. Das Kernsymptom ist die sogenannte PEM (=post exertionelle Malaise), was eine starke Verschlechterung der Symptomatik nach geringster Belastung beschreibt. Bei dieser Belastung handelt es sich nicht selten um allt\u00e4gliche T\u00e4tigkeiten wie Spazierengehen oder Duschen. Jene Verschlechterung tritt h\u00e4ufig erst 24-48h nach der Anstrengung auf und kann \u00fcber mehrere Tage bis Wochen anhalten oder sogar dauerhaft bleiben. Eines von zahlreichen Symptomen ist die extreme und lang anhaltende pathologische Ersch\u00f6pfung.<\/p>\n
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[\/et_pb_text][et_pb_button button_url=“https:\/\/lost-voices-stiftung.org\/aufklaerung\/#symptome“ button_text=“mehr zur Symptomatik“ button_alignment=“center“ _builder_version=“4.16″ custom_button=“on“ button_text_size=“14px“ button_text_color=“#ffffff“ button_bg_color=“rgba(53,55,82,0.39)“ button_border_width=“0px“ button_border_radius=“0px“ button_letter_spacing=“1.5px“ button_font=“Josefin Sans|700||on|||||“ custom_margin=“-30px||“ custom_padding=“23px|32px|23px|32px|true|true“ box_shadow_style=“preset3″ box_shadow_vertical=“47px“ box_shadow_blur=“48px“ box_shadow_spread=“0px“ box_shadow_color=“rgba(100,146,188,0.15)“ locked=“off“ global_colors_info=“{}“]
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Der aktuelle Forschungsstand belegt, dass es sich bei ME um eine chronische k\u00f6rperliche Erkrankung handelt. Man findet immer mehr messbare Laborparameter, die auf ein nicht enden wollendes Infektionsgeschehen verweisen. Das Fehlen bestimmter Enzyme spielt eine Rolle, ebenso genetische Faktoren und Hormonfehlregulationen.\u00a0<\/span><\/p>\n <\/p>\n [\/et_pb_text][et_pb_button button_url=“https:\/\/lost-voices-stiftung.org\/aufklaerung\/#diagnose“ button_text=“mehr zur Diagnostik“ button_alignment=“center“ _builder_version=“4.16″ custom_button=“on“ button_text_size=“14px“ button_text_color=“#ffffff“ button_bg_color=“rgba(53,55,82,0.39)“ button_border_width=“0px“ button_border_radius=“0px“ button_letter_spacing=“1.5px“ button_font=“Josefin Sans|700||on|||||“ custom_margin=“-30px||“ custom_padding=“23px|32px|23px|32px|true|true“ box_shadow_style=“preset3″ box_shadow_vertical=“47px“ box_shadow_blur=“48px“ box_shadow_spread=“0px“ box_shadow_color=“rgba(100,146,188,0.15)“ locked=“off“ global_colors_info=“{}“] „Ich erinnere mich noch genau an den Tag, an dem alles begann, den Tag, an dem mein ‚gesundes‘ Leben endete: keine Schule mehr, kein Volleyball, kein Tennis; ein Gro\u00dfteil dessen, was mein Leben bis dahin ausgemacht hatte, r\u00fcckte in weite Ferne. […] Mein gr\u00f6\u00dfter Wunsch ist es nat\u00fcrlich wieder gesund zu werden, aber wenn das nicht m\u00f6glich ist \u2013 oder bis dahin \u2013 w\u00fcnsche ich mir, wahrgenommen und nicht vergessen zu werden.“<\/p>\n [\/et_pb_slide][et_pb_slide heading=“Emily“ button_text=“zum ganzen Bericht“ button_link=“https:\/\/lost-voices-stiftung.org\/emily-rose-collingridge-1981-2012\/“ _builder_version=“4.16″ body_font=“||||||||“ body_font_size=“18px“ background_color=“rgba(39,53,130,0.69)“ global_colors_info=“{}“ sticky_transition=“on“]<\/p>\n „Ich reagiere extrem auf kleine Belastungen und sensorische Reize. Stimmen, die aus dem Erdgeschoss zu mir heraufdringen, ein kurzer Besuch eines Arztes, ein bisschen Licht – all das kann bei mir zu rasch anschwellenden Schmerzen f\u00fchren, wobei ich mich fast \u00fcbergeben muss, jeder Atemzug ein Kampf ist und ich das Gef\u00fchl habe, dass mich dieses Leiden gleich verr\u00fcckt macht.<\/span>„<\/p>\n [\/et_pb_slide][\/et_pb_slider][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=“1″ admin_label=“Videos“ _builder_version=“4.16″ background_color=“#fffafc“ global_colors_info=“{}“][et_pb_row _builder_version=“4.16″ global_colors_info=“{}“][et_pb_column type=“4_4″ _builder_version=“4.16″ custom_padding=“|||“ global_colors_info=“{}“ custom_padding__hover=“|||“][et_pb_text _builder_version=“4.16″ text_line_height=“2em“ header_font=“||||||||“ header_2_font=“||||||||“ header_2_font_size=“52px“ header_2_line_height=“1.2em“ header_3_font=“||||||||“ text_orientation=“center“ text_font_size_tablet=““ text_font_size_phone=“14px“ 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Myalgische Enzephalomyelitis Es sind vor allem junge Menschen, die durch einen Infekt aus dem Leben gerissen werden.Die neuroimmunologische Multisystemerkrankung Myalgische Enzephalomyelitis ME (oft auch als Chronic Fatigue Syndrome CFS bezeichnet) ist eine Krankheit, die alle Dimensionen sprengt. 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