News
Gina Livingston ”My Bed” ME/CFS Awareness Campaign
In Awareness Month, Gina Livingston is releasing a new song for the first time since 2007. She is using her song „My Bed“ to raise awareness for the often invisible illness ME/CFS.
Your personal ME/CFS illness forms the core of „My Bed“ and is the driver for this ME/CFS Awareness campaign. It is Gina’s first song release since 2007 following her illness. She is supported by the Lost Voices Foundation to raise funds for ME/CFS research.
Successful benefit concert in favor of the Lost Voices Foundation in Mainz-Kostheim
A musical evening full of commitment, emotion, and solidarity: On April 18, 2026, the MBR Big Band hosted its benefit concert for the Lost Voices Foundation. The band has been regularly supporting the foundation with benefit performances since 2013 – a...
We are looking for support for our team!
The work of the Lost Voices Foundation thrives on the commitment of many people who contribute their time, knowledge, and energy as volunteers. To further advance our projects and support even more affected individuals, we are looking for new volunteers...
Benefit Concert for the Lost Voices Foundation: MBR Big Band Plays at the Bürgerhaus Mainz-Kostheim
Since 2013, the MBR Big Band has dedicated its New Year's concert to the Lost Voices Foundation. In doing so, they have already raised a considerable sum for the foundation. Now it's time again: on Saturday, April 18, 2026 at 7:30 PM (doors open at 6:30 PM), the concert begins...
Butter Pretzel Run raises money for Lost Voices Foundation
The 22nd traditional Butterbrezel Run took place in Holzheim on December 31, 2025. Despite the freezing cold of -8°C, 320 runners did not miss the opportunity to start at the end of the year and send a strong message together for...
Benefit Concert by the Glücksklinger on December 6th – Music that Creates Hope
Photo: Die Glücksklinger With their passion for music and a big heart for people, Die Glücksklinger have been captivating audiences since 2012. The charity band, made up of 9 friends who met in a school band, has made it their mission...
Cooperation and Award of the First Joint Junior Scholarship
As part of the International ME/CFS Conference 2025, the Lost Voices Foundation and the ME/CFS Research Foundation have agreed to collaborate on the joint promotion of early-career scientists in the field of biomedical ME/CFS research. For this purpose, the...
Critical Assessment of the DGN Statement on ME/CFS
The Lost Voices Foundation and the supporting patient organizations and affected person initiatives view the recent statement by the German Society of Neurology (DGN)[1] on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) with great concern...
Making the invisible emergency visible – Lost Voices Foundation calls for help for 1.5 million sufferers in the state parliament
Every day, the Lost Voices Foundation receives calls for help from people in need of urgent medical assistance – their fates are frighteningly similar. Many affected individuals are completely bedridden, can barely speak or eat...
Opening of the Munich Pain and Fatigue Center for Young People (MPFC)
On May 23, 2025, the Munich Pain and Fatigue Center for Young People (MPFC) at the Schwabing Children's Hospital was officially opened with an award ceremony. This center represents a significant milestone in the care of young people suffering from...
PEDNET-LC: New healthcare network for children with Long Covid and ME/CFS
In order to provide better medical care for children and adolescents suffering from Long COVID and ME/CFS, the Federal Ministry of Health is funding various projects in the coming years, including the...
Review of the 3rd International ME/CFS Conference in Berlin
From left to right: Katharina Langer (TU Munich), Katharina Michiels (LVS), Sarah Richter (Charité Berlin), Nicole Krüger (LVS), Merle Stern (Charité Berlin), Lara Windzio (Charité Berlin), Annick Fehrer (Charité Berlin) Missing: Sandra Dommke (Mannheim) On the 12th...
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Contact
Phone number: 0511 | 2706751
Email: info@lost-voices-stiftung.org
Cooperation Partner Network PEDNET-LC